I.B.AHC
Biobank and Clinical Registry for Alternating Hemiplegia

a service for the development of the research on this rare disease

English

Alternating Hemiplegia of Childhood (AHC) is a very rare neurological disease, still poorly investigated. 
I.B.AHC is composed of two main repositories, the Clinical Registry and the Biological Bank (Biobank), designed to collect, organize, keep and share both the clinical data and the biological samples (DNA, RNA and Cellular Lines) of the patients affected by AHC. 
Thanks to I.B.AHC, the collected clinical data and biological material are available for any scientifically valuable and non duplicated study and research on AHC. 
For further information, please contact info@ibahc.org 

         
THE I.B.AHC PROJECT AT THE
WORLD FORUM
"HANDS ON: BIOBANKS"
(The Hague, 22 - 23 November 2013)
download the poster
   
SECOND INTERNATIONAL SYMPOSIUM ON ATP1A3 IN DISEASE
Genotype/Phenotype Correlations, modelling and identification of potential targets for treatment
(Rome, 23 - 24 September 2013)
   
INTERNATIONAL STUDY
GPC-AHC ON THE
GENOTYPE-PHENOTYPE CORRELATION IN AHC

with the inclusion of all the patients available in I.B.AHC
March 2013
   

(go to the News)

 

 

 

I.B.AHC
Biobanca e Registro Clinico per l'Emiplegia Alternante

un servizio per lo sviluppo della ricerca su questa malattia rara

Italiano

L'Emiplegia Alternante (AHC) è una malattia neurologica molto rara e ancora poco studiata.
I.B.AHC consiste di due strumenti principali, il Registro Clinico e la Banca Biologica : due contenitori progettati per raccogliere, organizzare, conservare e condividere sia i dati clinici dei pazienti affetti da Emiplegia Alternante, sia i loro campioni biologici (DNA, RNA e Linee Cellulari).
Attraverso I.B.AHC, i dati clinici e i campioni biologici raccolti vengono messi a disposizione per qualsiasi studio e ricerca per l'Emiplegia Alternante purché di qualità scientifica e non duplicato.
Per maggiori informazioni, contattare info@ibahc.org 

         

All the information available on the Official Website of the Symposium on ATP1A3 in disease

SECOND INTERNATIONAL SYMPOSIUM
ON ATP1A3 IN DISEASE

Rome, 23 - 24 September 2013
Official Website
The program, the forms for the registration and the abstract submission
are available on the Official Website
of the Symposium