RESULTS AND FUTURE DEVELOPMENTS
At present, I.B.AHC contains the complete clinical documentation (included the video-photographic documentation) and the biological samples of more than 30 Italian patients.
The new I.B.AHC on line Clinical Registry is now available (February 2010), accessible via Internet in a secure and controlled way: this will allow a more efficient data entry and management and an easier data retrieval.
I.B.AHC will be completely available also in English very soon (On-line Clinical Registry, Related Forms), to facilitate the access by any international research groups, patients and physicians.
I.B.AHC will thus become an even more precious resource, open to everyone, with the contribution of everyone: of the patients, donating their clinical data and biological material; of the researchers, agreeing to use I.B.AHC in a non-exclusive and collaborative way, and to share the results of their research; of the treating physicians, accepting to share the information on their patients and participating actively to the study of the disease, to support the research and the development of a better social and health care for all the affected patients.